Skip to content
03/02/2013 / katnewman

The lovely Jess, and Functional Neurological Disorder

You’ve probably never heard of this disorder, I know I hadn’t.

I want you to meet Jessica, she’s 23, she’s a dancer, and her day job was as a carer for the elderly.  She married her soulmate Terri on 30th June 2012 and life was good.

Two months later FND suddenly took over her life. She now needs 24 hour care, cannot walk more than 5 meters on a good day, (with the help of a zimmer frame and another person to help) and is confined to a wheelchair. They live in a cobbled town, so getting about in the wheelchair isn’t so easy either.

*Functional Neurological Disorder is where the bodies nervous system has a break down and stops sending the signals to and from the brain to move properly. This causes the body to have sporadic, spasmodic, dystonic and involutary spasms. It causes incredible pain and twisting of the muscles in the body leading to person becoming disabled with functional movements problems, walking and mobility issues. It can also include dissociative episodes with Non-epileptic seizures/attacks*

She has seizures that can last hours, and often has hallucinations. Her speech is frequently impaired but she is working so hard, with her lovely wife Terri, to raise awareness for this condition. Because the condition is so unknown, the NHS do not really recognise it for what it is. She has been turned down for an electric wheelchair by the NHS as they deem her able to walk. I know a few sufferers of Fibromyalgia and ME who know this kind of situation only too well.

The following video will say it all much better than I ever could – **warning, some people may find this upsetting, I certainly did, but good on you girls for putting it out there**

http://www.youtube.com/watch?v=dD1f_QInut0&feature=youtu.be

How does a fully fit and functioning adult, who loves to dance, cope with suddenly losing it all?

They are currently fundraising to buy Jessica an electric wheelchair due to the epic fail of the NHS to support her, and also to help fund research into FND – and also to raise awareness for this little known condition. So consider yourselves made aware!

To help further, you can check out their facebook page which is updated regularly with updates, blog posts etc and if you’re feeling so inclined, there’s a link where you can donate some money.

https://www.facebook.com/#!/JessicaSherwoodFndSufferer

They are having a fundraising auction in the near future, and naturally one of my affirmation bracelets will be on it’s way to them next week to help contribute. If you are a company, however small, you always get the odd request here and there for donations for raffles etc. I feel these guys are very much deserving – as a crafts person and artist through and through I can only liken Jess’ situation to how I would feel if I lost the use of my hands, it would be utterly devastating and I really don’t know how I would cope.

I admire Jess so much and so I’m asking you all, to like her page, share her page and get more awareness out there for FND. Thank you 🙂

Advertisements

8 Comments

Leave a Comment
  1. Sue Reynolds / Feb 3 2013 3:48 pm

    Liked and shared x

  2. Terri-ann Sherwood / Feb 3 2013 4:02 pm

    This is beautiful! Thank you so much for your kindness and support xxx

  3. Tony / Feb 26 2013 6:12 pm

    I don’t use Facebook or twitter. Is there a way to contact Jessica or Terri-Ann Sherwood via email?

    Tony

    • katnewman / Feb 26 2013 6:19 pm

      Hi Tony, thanks for the message – I have passed on your email address to Jess and asked her to get in touch with you directly.

  4. Tony / Feb 26 2013 7:12 pm

    Thank you Kat. I am on also on Skype also.
    Regards
    Tony

  5. bob / Feb 28 2014 9:26 pm

    Hiya I’ve had function neurology disorder for 15 years and been told by neurologist many times that I am mad i haven’t been able to work or walk and now in wheelchair

    • katnewman / Mar 18 2014 7:11 pm

      So sorry to hear that, Bob. Definitely connect with Jess via Facebook if you can, I’m sure she would love to hear from you

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: